Brave 7-year-old girl battling THREE rare conditions

A video of a seven-year-old girl who is battling three rare conditions has gone viral as she performs an adorable dancing routine while waiting for a bowel transplant.

Isabella Thompson, from Swift Current, Saskatchewan, Canada, has been living in the hospital since birth. 

She is severely immunocompromised and has a form of a dwarfism, and a colon birth defect has left her on the transplant list.

However, she is not letting her grim situation get her down. 

In late January, her mother, Kyla, posted a clip to TikTok of Isabella dancing to Justin Timberlake’s song Can’t Stop the Feelin’.

The video has been viewed more than four million times and liked more than 481,000 times. 

Kyla has been sharing Isabella’s medical journey on her blog and social media accounts since her daughter was a year old, but never expected to go viral.   

‘It was my only outlet for my mental health,’ Kyla told CTV News. 

‘What really helped me is the amount of people that reached back to me and said: “Look, what you wrote, what you said, what you shared has helped me.”‘ 

When Kyla, became pregnant in 2013 with her first chilld, no doctor told her or her husband, Lyle, that anything was wrong.

Their daughter was born on December 6, 2013. But, in just a few days, her parents would learn how sick she really is.

Within weeks, Bella was diagnosed with three conditions: severe combined immunodeficiency (SCID), Hirschprung’s disease and cartilage-hair hypoplasia.

The first, SCID, is a very rare disorder caused by mutations in different genes involved in the development of the immune system.

SCID specifically affects two main types of white blood cells T-cells, which identify and attack pathogens and B-cells, which make antibodies against the ‘invader.’

Because Isabella has neither of these types of cells , it makes her highly susceptible to severe infections. 

Approximately one in 58,000 babies are born in the U.S. with this condition every year, according to KidsHealth. 

Isabella has undergone a bone marrow transplant and currently receives IVIG (Intravenous Immunoglobulin) therapy, made of donor blood, to give her immunity. 

Her second condition, Hirschsprung’s disease, is a condition that affects the large intestine, known as the colon.

The condition is caused by missing nerve cells in the muscles of a baby’s colon and renders a newborn unable to pass a bowel movement for several days.

Doctors were forced to remove all of Isabella’s colon when she was under a year old and have performed at least 21 surgeries. 

Her mother, Kyla, wrote on her public Facebook page that her daughter still battles through ‘pain, distension, poor motility, [small intestinal bacterial overgrowth], and occasional restricted diets.’     

Lastly, Isabella has cartilage-hair hypoplasia, which is a form of dwarfism.

People with the condition are generally of short stature, have very fine and light hair, and are immunodeficient.

Cartilage-hair hypoplasia is common among the Amish population but, in the general population, it is so rare, that it’s unknown how many people have it. 

Despite her conditions, Isabella still love dancing, singing and drawing, which her mother shares on social media. 

One of the videos on TikTok, featuring Bella drawing, even captured the attention of American pop musician Halsey.

‘She said: “I saw your daughter’s video on TikTok and I started watching your Instagram videos,”‘ Kyla told CTV News. 

‘She said Bella’s love for music and art really touched her, and that she wanted to send Bella a care package.’

Kyla told CTV News that despite all of her hardships, Bella continues to find joy in music and art.

‘We just want to help others get through hard times,’ she said.